I said I don’t know how it is happening, this rolling through hidden, painful diseases, migraines unfolding over the years suddenly, calmly, admiring the sun casting shadows over the horizon edge into the elms, oak, maple and yellow pine, thinking this is beautiful, this is sparkling and bending into a kaleidoscope with Isaiah steaming and proclaims He shall not be broken…
Darkness. I don’t know. I was sipping orange blossom tipped water and then I awoke in a bundle, water all over me, time what time? There was no marker beginning and ending.
I looked at my right leg, my leg, knee down and around my arch and ankle back up again in splotches of gorgeous purple and saffron bruises.
I stare. I cannot stand. My entire body was stretched and beaten, reformed and disassociated. It was a seizure. I was terrified. Five more in a few weeks. So I told my neurologist. I was afraid to speak. But I did. Thus began two years of barbaric tests and medicines. Time to time they still return, shadows pulling me to a cavern Of night. A cavern Of bright souls singing from Psalms and sometimes chants, songs of Milarepa as I swim through the Bardo and again awaken. My lip swollen, tongue bleeding, I know where I had give and reflection makes it a whirring set of waves of fear. Few things are stranger than never knowing when they will emerge. Seizures. Meds no meds many meds new meds murderous meds then meds work ok looks good let’s cut back What? Ok so I do and click Jello legs and hello floor. Scratches. Bruises. Gazing into the wooden floor and hoping here nothing was broken. Deal with it. Give warnings when Lyme’s takes new forms old forms beware stay back it strikes do not touch me the muscles more powerful than the steroids they were injecting. Life. Deal with it. I said Doctor, the only thing that really worked without burnt bay leaves and thyme in my mouth without side effects killing me or making me wish it would was medical marijuana. Thank you, Georgia. Lack of legislation for medical for Lyme’s and all the disorder leaves me tsk tsk tell me no drama so fuck off it hurts keep personal effects out of my definition. Through cancer through the many legged Lyme’s nerve damage disc disorder white blood cells contour and dominate into another gate of hell and idiots try to place blame on divorce and I cease speaking into that void. I lived. St Padre Pio St Raphael St Patrick and the 8 fold path. And so as Lyme’s rises as it does now stay on track understand that all this pain is not a choice.
So I laugh find a way Rise. This is Lyme’s. A strangers sneeze could kill me. So benefits are cut and SNAP goes down to $15 a month I ask do I starve or face the hydra headed threats of death in my veins and dna. It does not matter between Medicare and the state I wonder who will pay for my ashes. Look me in the eyes and say you understand That is all I want Just understand.